The Invisible Scarlet Symbol of Fibromyalgia - What It Has Taught Me

If the invisible Scarlet Symbol, I wear now didn’t have a name or label on it; I would not have learnt the lessons I know now about myself and what it truly means to appreciate life for what it is.  

I have learnt regardless of any medical labels that I am a true warrior and survivor, through and through even through the most challenging times 

I can never put into the words what it feels like to this new existence in order for you to truly understand what it feel like. 

I have learnt that aside from being a warrior and a survivor that my body is fragile, more than I ever imagined before. I previously took it- my whole being and existence in this world for granted 

I never for one second, I had to stop and think of what was going on with my body, internally or externally. I woke up and embraced each day on auto pilot. On most days I would not even remember how I arrived at my final destination 

I have learnt that before I was not truly awake and very aware, as I am now of the immediacy and urgency of life and death. What it means to be physically healthy one day, to no longer having the same the same levels of abilities you had before. 

You see after surviving bereavement twice over of loved ones. It appears these particular lessons in my were not sufficient enough for me to awaken to myself and the reality of what death really meant 

Oh no, bereavement was not sufficient enough for the universe to enable me to learn what it meant to be afflicted by immediate and sudden loss. 

Instead the universe chose another dose to be inflicted upon me, in the form of what I call "a raging beast and an invisible scarlet symbol, scarred and scorched deeply into my nerves and muscles. To the point where at times I felt like oxygen was being depleted from my living cells or someone had physically thrown me into a scoring fire. 

There were times, I thought this was it, that I was going to die. Not only was I going to die, it was going to be a slow,  painful and tortuous death that would eat away at me in every sense including taking my soul.  

Lessons learnt were

Although I was a warrior and survivor ready in suited and booted in my body, this felt like fighting a beastly creature on fire that is a million times more vicious, cruel and unkind to the point it tested my physical and emotional well being. 

This beast I call it, had become my everyday waking nightmare. There were temporary moments when I believed it was gone (I had miraculously been healed). It was only a temporary reality,  it only lay dormant sometimes during my sleeping moments,  most idles moments to only attack in my waking moment to remind yet again it had not gone.  

It chose to steal my happy and happier times away slowly and to remind every second of the new limitations my body and mind had. Each time I awoke, pushed my limits a bit (which were my old normal and usual patterns in life) it would remind me that if I continued to push my body there would be consequences. 

It would snatch me back to reality just as soon as I got to the surreal world. It would remind me that not only was my happiness temporarily, that if I engaged as I usually did physically and mentally, my body would shutdown.  

I would pay for it for days or weeks to come, feeling crippled to even get up to partake in the daily and basic normal activities which we don't even take a second to think about. We just do them, like getting out of bed or grabbing a hot drink.   

Progressively I was fighting a losing battle. I didn’t have the fight of the Warrior Princess in me to fight, the hardest battle in my life. I went through the similar process of what people like me who experience bereavement go through (moments of denial, anger, guilt, sadness, loss etc...) 

Only this bereavement process was a process for me and only me. You see I was going through the stages of mourning me, whilst I was still alive.

I literally thought I was going to die. I believed my time of this earth was limited and numbered. Initially, I believed that my body was attacking itself. Well not completely, although it felt like that.  

In the beginning the beast attacked in the form of any recognizable ailment. My peers and colleagues acknowledged the external affliction which to them appeared as though I was suffering from a bad case of a flu

I was described as looking ghostly like (although I didn't notice the resemblance. I kindly accepted that something was wrong and that I must not be well. Only I knew it was not the flu although I could determine what was wrong. 

Little did they and I know that what initially felt to be feel like flu symptoms would never go away and would become my new normal daily life.

The older version of me was slowly dying and morphing into this new version of me (not a new model unfortunately). It would a new version that no longer would feel well. 

You see my scarlet letter that is scorched within my veins is mostly invisible. You would never know looking at me the new hell that I go through. Externally my appearance presents as "normal."

You will never ever be able to see it, feel it, know what it truly feels like to live this existence. Only unless you are part of my warrior tribe. 

What it feels like to wear this burden:

It feels like navigating a new planet for the first time without a campus. It can be very isolating journey, one filled with sleepless nights and days which feels as though a clown is going to literally jump out and tell you its all been a huge joke. You can now wake up and go back to living your normal life. 

Initially, you go though a process where you feel like you are still you. You wake up ready to embrace the morning to go for that long jog or hike. To only be reminded that although your mind wishes to embrace the day, its only a dream for in reality you are not physically able to. 

It feels like some twisted and cruel form of reality which at times you wish to no longer partake in. Only you realize there is no get away car and you have to accept this reality as your new normal

You feel all these unimaginable experiences which you can’t speak into existence for another non warrior to understand

It feels as though you have visited a world, which you can't really describe to someone else - so you remain silent as you go though this roller coaster of a self-discovering journey  

So you either remain silent or you speak up - when you choose to speak up, you want to scream to the top of your lungs 

To express this words - that no really, it is does not feel like the cold, headache or ache, pain that you have right now that will go away in a couple of days or week. For I once experienced those ailments and can relate. 

You wish to scream out that although I look well externally - that is not the actual reality of what is going on internally that at this precise moment;

I feel every fiber of my nerves throughout my body including my hand

I feel like I might be on fire (chronic pain) that is the reason I may not be able hug you, or hold a pen, or write for a long periods at a time. 

I feel a cold chill of the sudden that is now making my legs feels as though they are swollen and my muscles are tightening up

That I can't recall when I fully woke up feeling like I experienced restorative sleep

That although I am talking to you right now my brain is trying to process and remember some simple words to help me complete by sentence

Even though the book you are reading looks interesting, my brain will not be able to process all the information 

You wish to scream out that - no it’s about you. That in moments when I am not able to physically get up and mentally not able to push through the barrier of brain fog, to come to meet you it definitely is not about you 

So you choose to stop explaining- for after-all you look completely well externally, so it is a belief and temporary thing that has now gone away, for you look well.  

So I choose now choose to own this scorching and burning scarlet symbol - I choose to name it and call it for what it is and to own it. For if I chose to not own it or name, I would not be learning any new lessons in life. 

It would be like disowning a part of me, that is here for a reason.  I wouldn’t be writing this today, nor would I be able to relate to others who walk in my shoes 

Nor would I be able to connect with someone who is unfortunately about to embark of this journey for the first. To let you know that you are not alone  

So I shall not ignore and not speak its existence for doing so, just means I am ignoring the life lessons I am meant to learn as a result of being afflicted 

I wear the scarlet letter externally even if some choose to believe it’s not real. 

Even if some who wish to believe for my sake that I will be healed and I will be fine. 

Or because some believe this thing does not exist and its only an experience I am going through 

I choose to speak of its existence because without embracing pain there is no life journey to knowing. To becoming fully aware of what your body and mind requires, or needs to eventually make the journey a bit easier and a bit more livable. 

I choose to speak of its existence  even if it was given a label by medical professionals as this is what some general population understand it to be and know is as Fibromyalgia  

If I didn't speak of its existence and being afflicted by it I would not have met some amazing warriors and survivors, who have enabled me a space to speak up for us to be able to mutually connect on an authentic level. 

At this precise moment, as I type the internal beast that I have learnt to tame overtime is not as idle and doing its usual initial subtle magic of attempting to resurface

You see every key I press with my fingers, is a slow and gradual re-awakening on the nerves in my body. A form of electrical wiring at play subtitling reviving itself to remind me not to over indulge in this activity. Even if my mind believes it has the will and power to continue by body reminds me otherwires

The beast is dormant for I have chosen to make it dormant and feel as though I have conquered it, which this might be true. It is only a comforting lie that I have created in order to live a semi normal life 

For it to be dormant means I have had to sacrifice my freedom of expression (namely stress is non existent or very minimal in my life). I have had to sacrifice the spontaneous and adventurous me - who would wake up go for a run or walk miles on end without a single thought of anything in the world only to smell fresh sea air and feel revived and revitalized again 

That person, who had so much energy and woke up revitalized is no longer a part of me and I have come to terms with that. This is part of the bereavement process 

I know live with a person who is never revitalized or fully energized as before with the understanding that she has to operate in this world at a much slower snail like space. 

So in a sense the beast is still winning - so the battle continues 

I have learnt to leave a slower and more mindful lifestyle, more than I had imagined before - which was not necessarily healthier as I was living the "fast paced and hustle until you die lifestyle,"  always on the go to no woman’s end and a road leading nowhere at times. Well a road up the career path ladder, but to where exactly? 

The beast lives within my nerves and controls my every waking moment - to what feels like being a puppet  

Every step I take I am reminded that either by body as my legs begin to become stiff and lock with each step I attempt to take. Whether it be up the stairs or an incline, or flat surface take your pick it depends on day. Either way I start to morph into a frail like older version of me ( a 90 years old me, I imagine often) lethargic, lacking oxygen/proper circulation at times, to feeling breathless for no damn reason (pardon my french).

It is a daily fight again the force mightier than you. Bring on mother nature with lovely force,- you become like the weather woman. Your body becomes more in tune with changes of the weather than it used to be before whether you are awake or asleep. The rain, misty, cold days and dump days bring on the pain and a lovely dose of chronic pain. the heat has its own impact which so far seems similar to colder months, with the added pleasure of feeling weaker. 

You would think that I had been on the most wonderful Skye Diving and Mountain Climbing activities, or even horse ridding for hours on end for my body to feel this -  on the contrary nothing that fancy only a 5- 15 mins walk sometimes is all it takes. 

So you go through circular lifestyle: 

Awaking to insomnia or chronic fatigue, to the the stiffness of the body, to the nerves doing what they do best in either over firing or short circuiting like electricity to chronic pain and all the other cocktail of symptoms that come with this condition 

As I type this my nerves through the puppeteering of the beast remind me that my figures and hands are fragile and stiff. That soon enough I will definitely need to stop this activity and rest  

I will have to stop even if my mind thinks and believes I can continue for hours- my wrists, hands and fingers remind me of the painful truth. 

So this is where I end of

Only I had to stop for a minute, to remind myself due to moments of memory loss and limited concentration levels, about what I started off writing about. What was this topic about? 

You see I can type this long script, but will limited in my brain function to now to read every single word this is due to limited concentration levels. So I opt for audio information more nowadays 

I am now also limited with multi-tasking - must not be done at all. Especially if I want to remember that my kettle might be still be boiling, whilst I am attending to another activity 

I am a warrior and survivor for I never cry anymore for 

• what I have lost
• what I am not able to do anymore, like house chores in one go without feeling completely wiped out. Now I am reminded to only clean in small manageable stages throughout the week. That is not the end of the world if I cannot attend to something immediately (the perfectionist in me) 
• for what I am missing out on, or may be missing out on. I now live a different type of normal, which has become just as good for me 
• for my youth being taken away

I am a warrior and survivor even though I am afflicted, I will not let this condition define who I am as a person 

I am a warrior and survivor for now I truly see yet again and appreciate how fragile and precious life really is. I really see what I didn’t see before which I neglected to see due to the “busyness of life” 

So now I hope you understand why, “if the  scarlet symbol I wear now didn’t have a name or label on it I would not have learnt the lessons I know now about myself

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ASK YOURSELF QUALITY QUESTIONS STARTING WITH THE WHY

#LifeLessons 

Asking Quality & Better Questions that could potentially transform your life - “ WHY” - “Why am I even alive what is my life purpose.” 

We often dream of an imaginary lifestyle of how life should be and will turn out, and end up being disappointed when the dream does not become a reality. 

What if -if you could start with your WHY? - This is what will define you through all the good and bad times, and still give you strength to bounce back up during times adversity 

#Lessonslearnt

1) I asked myself “why me” when my dad suddenly passed and I had to taken the longest flight of my life ever 

2) I asked myself “why me,” when my youngest sister suddenly became ill and my gut wrenching intuition told me to stop everything and fly yet again on the longest flight of my life. To only be with her for one day and half before she would collapse into a comma and eventually passage 

3) Before this I asked myself why of all the losses I had suffered in between of family members from cousins (who were like brothers), to an aunt, uncles and then recently granddad and most recently grandma 

3) I asked myself why me when I was first diagnosed with an under active thyroid over 10 years ago when I was at the peak of my life and most active. So much I refused to believe what my GP told me, that I decided to continue running each day to hung onto me physically and mental even though - physically o was losing the strength I once had 

4) I asked myself why last year when I was diagnosed with Fibromyalgia after three years of suffering from numerous undiagnosed symptoms. 

All the questions I ask myself, my reason also ended up being why not me? What was so special about me to be exempted for adversities in life 

I asked myself why me again - and my answer would always be what is the lesson here I am ended to learn. If I choose to close my heart ❣ I will miss the greatest lessons in life 

What is my life purpose that is greater and beyond all the pain and grief I had suffered in my lifetime 

#LessonsLearnt again 

My heart had allowed something new in. 

I learnt to appreciate how short and very precious life was 

I began to feel grateful for the souls that had been introduced in my life to guide me - to enable me to experience life experiences with them through happiness, laughter, pain and loss 

I began to appreciate that I had be chosen to have this great opportunity for the souls laid to rest, to be part of their lives; what an honour that was to be a daughter, an older sister, a cousin/sister, niece and a granddaughter 

I continued to question my purpose: 

As life was short and I started to realise I could not take it for granted now I was alive and the souls did not have the opportunity to continue living 

I could not take life for granted and sleep through it. 

There had to be a greater purpose for me in this lifetime beyond the 9-5pm and just existing day to day without making any meaningful impact in this lifetime 

Although I was connected to working and being involved in charitable organisation most of my life (through choice) I knew there was still more I could do out there in the world 🌍 

#LifeLessons again 

I cried through my grief and heartache ❣ to the point time stood still - days, months, a year past when I hugged my sofa which became my comfort. I felt a huge disconnected from the world and the people who were going through their daily lives 

I cried for the heartache and heart space that would and could never be feel again 

I cried for the loss and death of the old me. 

Only to realise I was still here. I had always been here and never lost me and soul. Only that my soul had learnt many lessons which it was processing, accepting in order to make peace with itself 

I am now at peace with the new me, even though I continue to wake up at times feeling and believing like I am still the person I was once before the loss and ailments I have suffered to only realise -the actual reality 

My ideal lifestyle was only a dream, I had imagined to walk pain free. This new reality is teaching me much more valuable lessons anyone could ever learn in life 

Appreciate each and everyday you spend with your loved one’s for tomorrow is not promised 

See the value in life and what you as a soul can contribute it to it by being fully awake rather than just existing just for the sake of existing 

Ask yourself the most challenging questions and shut down the beautiful answers that tell you lies ( to remain as you by not challenging yourself) 

If you are like me and currently suffering from a chronic pain condition and an Invisible Illness know that your soul never left, you are still you. Choose to stay awake through all the happy and painful experiences of current being - and take from it what you can as life lessons which can help another soul through their new journey 

Inspired by Muniba Mazari CLICK HERE TO LEARN MORE!!!

Chiko💜💜💜

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Online Home Business (Lifestyle)

#LifestyleBizTips (Video No.3)

WHY DOES YOUR PERSONAL STORY MATTER, WHEN STARTING AN ONLINE LIFESTYLE BUSINESS

Know, Like, Trust Factor

Learn more from my latest Facebook live video below

Chiko💜
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CfM Elite Business Women’s Club💫💫💫

Video 1: WELCOME LADIES

CfM Elite Business Women’s Club

I created this club as an opportunity to connect with other like minded women who are aspiring to achieve greater and grander things in their lives; through fulfilling their intended Life Purpose/Vision .

Elite Status:

I don’t know about you, but for me it means owning who you are as a person and women in this world  by staying true to your inner core.

Which comes with the development of Self-confidence, continuous life education, pursuit and execution of one’s life Vision, openness to learning and involvement in Self-Development (mindset transformation) in order to add value in other peoples lives including making an impact.

Do say hello and let me know where you are watching from.

Together as women and ladies we are stronger than divided. 

CfM Elite Women’s Club we will talk about exciting ventures such as
1. Vision/Life Planning
2. Lifestyle Business
3. What it takes to become success and to develop the Mindset of a Millionaire

SIGN UP TODAY:

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Chiko
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Have you walked in her Exact Footprints 👣 and Shoes 👠

#SundayFloetry

CFM

Have you walked in her Exact Footprints  and Shoes  

You will only get close to knowing and relating to her story 

You will get close to assuming and recommending what is best for her 

Unless if you have walked in her exact footprint and shoes you will never know exactly how she feels 

You may have heard other experiences that relate to hers 

You may have experienced ways of helping others similar to her 

Why? 

There is only one of her in this world  and no one else but her 

You will never be able to walk in her exact shoes, in this lifetime 

As much we try and predict, diagnose and try to understand another human beings experience we will never truly know what it feels and to be like them 

We can offer advice, recommend remedies to help but we can heal another person unless their soul allows for it. Unless they themselves truly believe in healing themselves 

You see we ( those who try to help) are only guides in other person’s journey and do not hold any magic potions or truths to another persons experience 

What is the Moral of this Floetry? ;)

Be a guide and only a guide 

Be judgement free 

Accepting each individual, as "an individual,"  regardless of any stories, remedies there are on this planet 

See and truly see that person in front of you as an individual (and not as a collective of the masses) 

When you reach this status of deeply connecting another individual, you will truly see the soul in front of you without their entity and possibly slightly be able to walk into their own truth 

This ladies truth? 

This lady, this woman knows her own strength and what she is made of

Although, she will hear you, listen to you, will truly see you; she will ultimately accept what she truly knows to be deeply embedded in her own heart ❣  -she knows her own truth

Her own soul which is deeply embedded in her soul will give her the answers she needs to know for that exact time in her life.” - You on the other hand can only be her guide and story teller but can never truly walk in her exact pained and strained footprint of life 

Chiko

#CfMLifestyleBiz 

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My Reason Why & Life Purpose: Girl Power. Supporting girls in #Malawi to fund for their own education @MoreThanAid 

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Life does not necessarily have to always be picture perfect.

Life does not necessarily always have to be picture perfect 

The challenge and strength of character comes when internal hurt and turmoil hits. 

Question is? 🤔 ⛈ 

▫️Do you run and keep running an endless marathon to nowhere? To only find you are still at the beginning of the race each time? 

▫️Or do you embrace the rainfalls, the waterfalls and storms of life knowing that soon IT - THE PAIN will pass. So will the moments of joy,  pure and utter absolute happiness? 

Often it is so easier reflect on the "Why Me and/or Us, Why Now and the I need a break from it all ( from the feeling of the changing tides of the weather - Life Cycles) 

The amazing life is that "ONE DOES NOT BECOME A HUMAN BEING BY LIVING A PAIN FREE LIFE." There is no hallway pass or break from it all. 

All there is the acceptance that pain and soul healing is part of the process. 

#Foodforthought: Life does not always have to always be picture perfect. Look beyond each and every body in an image and really see through them. When you do you will release they are an entity carrying a SOUL - hosting a multitude of feelings

Why Me, Why Now? 

The truth of the matter is there is never going to be a picture perfect moment and no one has an exemption/hall pass from life.  

The truth is when the good times flood in and shine brighter grab them and Cherish those moments and don't take them for granted knowing that soon blissful moments will soon pass too 

Connect with your soul often - embrace the different tides of life, be AWAKE in each moment in order to deeply learn from the experience in order to grow from it 

Give your soul the opportunity soak in all that life has to often and to cleanse itself often

Post inspired by the matriarch and Agogo of our family. 

Chiko💜💜💜

#CfMLifestyleBiz 

www.cfmxclusive.com 

My Reason Why & Life Purpose: Girl Power. Supporting girls in #Malawi to fund for their own education @MoreThanAid 

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I am what a person with an INVISIBLE CHRONIC ILLNESS looks like (September is Invisible Illness Awareness Month)

Photo of Right Credit to @FibroHelpingHands

#LifeLessons

Dear Chronic Pain Warriors and Invisible Illness Survivors. 

This month and everyday,  I am celebrating your unimaginable strength and courage for being fighters in life. 

As much as we are fighters in life, you and I personally know that Invisible Illnesses come with many life lessons, personal challenges and daily battles to fight as well. 

For instance, you may have experienced the following challenging emotions, or you are currently going through these challenging right now: 

✅Mental Health and Well Being Challenges ( anxiety, guilty feelings for having caused the condition, depression, grief over the loss of what life used to be like) 

✅Physical challenges of mobility and not being able to function fully physically as you used to. Including the ability to exercise, or keep fit as much as you would like to. 

✅Social Isolation due to being ill and feeling poorly everyday, even though you "look well," to the external world.

✅Not being able to contribute in society work wise. Or you are currently working full time, because you need to do so, in order to survive financially. This only leaves you feeling even more physically and emotionally exhausted every day, with the limited ability to do much after working hours. 

✅You have fought to find all sorts of ways for cures, but to no avail as doctors tells you there is no cure. Or others tell you there is a cure and you wonder why the same cure is not working for you. 

✅Too many more to list 

You are not alone:

▫️Just remember that in your daily struggles you are not alone. There are communities of people out there who will understand exactly what you are going through 

I also know what it feel like to walk in your shoes everyday. 

My story:

▫️I was diagnosed with Hypothyroidism over 15 years ago when I was in my peak state health wise. I was active and doing all the things, I thought were helping me to be a healthy person. 

It took a lot longer to come to terms with the diagnosis and it felt surreal. Initially, I was determined to prove Doctors wrong. In end, I   accepted my new fate and all the symptoms that come with being this condition. 

▫️Flash forward to last year I was diagnosed with Fibromyalgia after 3 years of being undiagnosed. I experienced mixed emotions of feeling grateful about knowing what the cause of my numerous ailments, to disbelief and also deep sadness as well. I cried for all the things I was losing. I also cried for knowing realising that I was not going to die. 

I experienced most feelings that you might have experienced, or are currently experiencing and I continue to experience some of these feelings below: 

✅Feelings of loss and grieving process of the old you and how life used to be

✅Feelings of living in surreal reality, you wake up each day believing that you are well again only to realise that is your old reality 

✅ Adapting to a new way of normal, never feeling well although you look externally well to the world. 

✅Adapting to other people's judgements, misconceptions, perceptions, their own notions of what your experience might be like. You hold back or feel like screaming out loud to some individuals who lack any form of empathy or understanding, or the initiative to learn what your experience might be like. 

Lessons Learnt: 

✅It is better to let go off guilt and other people's perceptions. Their perceptions are just that, theirs. They have not walked in your shoes. 

✅Know that no one can understand the true cause of your illness more than you and there are numerous reasons why these conditions occur as researched by the experts/professionals based on other patients/individuals experiences.  Some causes are unexplained, unexpected/uncontrollable, caused by incidents, accidents, infections, misdiagnosis, the list is endless ....

✅Invisible conditions are definitely real, not in your head, as you and I live this experience every single day. You do not need to prove anything to anyone who does not understand. Your energy is worth gold, save it for those who will support you:) 

✅ Only you, know you best and the journey you need to walk in life. Just remember you are not alone

✅ Surround yourself with beautiful souls who will love you for being you and support you on new journey as well

Give yourself a break, rest when you can and need to. Pamper and treat yourself very often for you deserve it for being a warrior and a fighter each day.  

Your friend Invisible Illness warrior

Sending Gentle Hugs and Love Chiko💜💜💜

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