Thursday, 27 September 2018

TOMORROW I WILL WAKE UP WITH ANOTHER YEAR ADDED TO MY LIFE

TOMORROW I WILL WAKE UP WITH ANOTHER YEAR ADDED TO MY LIFE 

Tomorrow, I will wake up feeling like me. 
I will wake up feeling like nothing has changed at all 

Tomorrow is the day, date and time will tell me, I am a year older 

I will wake up feeling sort of like 

I will wake feeling like. I am me and nothing has yet 

But ... 

So much has changed 

You see my picture above 

So much has changed, although I will wake up as though nothing has changed so much has changed 

At first I wanted to not celebrate 🎉🎊 for I thought what was there to celebrate 

Then I thought what is the point of being and meeting anymore - for what was there to celebrate 

You see the was once a time I celebrated, nearly every year 


Nearly every year I celebrated with friends and family 

So much has changed ... 

Although I will awake as though nothing has changed. 

I will wake up still feeling youthful inside 

Only time ... can tell how much has changed in my life.... 

Life took over, shifted and twisted my norms of reality and gave me a glimpse to another side of life 

Time too over 

It showed so many things 

Life is too short it told 

Time told me I didn’t have control over most things I though I had control 

Time painted a clear picture of what it meant to live and love on borrowed 

Time told me to wake up to my reality 

You see so much has changed 

I will wake up tomorrow 

I want to wake up tomorrow feeling grateful 

Feeling grateful, that I am still here 

Feeling grateful of what is the now, the present time 

Tomorrow, I will wake up 

Only I and time will know, what will happen between now and tomorrow 

I can only be optimistic that tomorrow I will wake... to reconnect with my being 

Until tomorrow .... 


Friday, 25 May 2018

YOUR HEALTH IS YOUR WEALTH


YOUR HEALTH IS YOUR WEALTH:
Over 10 years ago, I would not have been able to make such a bold statement. I lived a “normal” spontaneous and active lifestyle life, which consisted of not giving too much deep thought into what it means to live with a long term chronic health condition.

Overall, I maintained a good health, jogged, hiked and ate the right foods. I was a vegetarian for 8 years due to being intolerant to a lot of foods for a younger age.  I was mainly mindful of having a clean and healthier diet (as my body would automatically reactively negatively).

The misconception is often that the only people who become ill, or develop chronic illness were unhealthy to start off with. This is inaccurate.

My health changed when I became diagnosed with an Underactive Thyroid. Although my Doctor informed me that I would not be able to lose weight or have the same level of energy I previously had; I was still determined to fight and push through. Prior to that I used to be a regular jogger. 

When my Doctor advised, me that I would not have certain abilities, I was determined to prove him wrong. I jogged every single day nearly for a year. Even though I had succumbed to taking medication for the rest of my life.
Then two years ago, my life changed drastically again, when I was diagnosed with a Fibromyalgia. 

Based on my weight and size, some people would assume that I made poor decisions with my health management and wellbeing; which is quite the contrary. In an ideal world, I be a size zero due to having a low appetite, food intolerances and being cautious of food choices. Unfortunately, due to low metabolism this is not the case. Since being diagnosed with an Underactive Thyroid over 15 years ago, I have less energy and aged 20 years plus before my years.

Additionally, Fibromyalgia aged me 40 years plus, before my years. Daily, I literally push my physical and metal being into existence. I no longer possess spontaneous abilities of getting up and interacting with daily activities without giving it a second thought.

Each move of my being is calculated, like chase pieces. I must be calculative and mindful of my abilities, to minimise the risk to crushing and being bedridden.

Moral of this Story:
I lived life knowing that I had certain habits to maintain such as a healthier outlook and making the right food choices.
What I took for granted then was how fragile the body can be. I didn’t really have to think about what it feels like to live without certain abilities everyday such as the following:
  •  Low energy and not having the ability physically to walk up the stairs, to lift myself up some days from a low seating area
  •       Feeling musculoskeletal widespread pain throughout my body in the beginning this felt like hell (like someone purposefully was setting my body alight and intense pain would go on for hours)
  • That I would lose my cognitive functional abilities and experience neurological problems. Memory issues, brain fog. Experience more than 10 episodes someday where my memory is completely erased. To the basic things of forgetting that something is in the oven, something is on the stove. To being remind either by noise that you were doing something previously.
  •   To losing the will to be proactive and spontaneous to interact in social engagements, as your body and mind tells you otherwise.
The lists of symptoms could go on …

All symptoms above I would have never deeply thought, as I was caught up in living day to day. Either being fully engaged in 9-5pm work, house work and social engagements. I never really had time to seat time to think about what it would feel like to not lose with certain faculties, physical and mental ability.

Why would I, have every thought about it? 
You see the thing is that when we are fully well and in control of our health, we never think about it. We never have to think about it especially when you know you are going to recover from your ailment.

Your Health is Your Wealth
It helps to pay more attention, so that when you are healthy you can do all you can to actualise your true potential. When you become limited health wise, it becomes even harder to navigate through life.

If you are in the position where you are contemplating you want to do something to change your current situation, which you are not happy in. Always think about what small step can you take to make that change, because you do have the power and control within you to make that change.

Always remember that tomorrow is not promised.  You can go from feeling well one day, to waking up one day to no longer feeling well again potentially for the rest of your life.
Take advantage of your good health, in a good way. Start to work slowly each day and in manageable ways to start achieving the goals you want to in life. Now rather than later in life.

If someone had told me prior to being diagnosed with an Underactive Thyroid and consequently with Fibromyalgia, that I needed to start achieving more in life. I believe some part of me would have paid attention.

This does not mean that if you are not in good health, like I am that you stop living. I recommend continuing living your life and achieving the goals you dreamt about achieving. Some goals you may need to modify according to your level of ability now.
For all of us regardless of whether we are “healthy” or “not healthy,” our health should be our wealth. It pays to continue being mindful and appreciating what we can do right now according to your level of ability

Much Love Chiko
Let’s Connect via the following Social Media Platforms:


GB

Wednesday, 14 February 2018

Episode 18: VALENTINE THEME 🌷❣️Select Your Prospective Client As You Would When Choosing A Life Long Partner

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HAPPY VALENTINES ELITE LADIES, 🌷

In today’s topic it a fun theme tied into Valentines Day. Let everyday be and feel like Valentines.

I pose a few questions about the qualities you look for in a long life term partner. What attracted you to them? What qualities you outlined like a dating profile for meeting your ideal partner

Could you outline the same qualities, core values, beliefs, attractiveness, appeal, motivation and ambition as a High Standard Bar you set for yourself for your ideal and prospective client?

You can also use this podcast session as a fun exercise with a girlfriend or friends to outline all the characteristics you look in an idea partner and then select the one you want to look for in a client/customer offline and online; including what you would want them to see in you.

Questions for you to consider for your Online Home Business:

  1. What type of qualities were you look for before you settled down with your partner. Or what qualities are looking for now in the right partner?

  2. What motivated you to become attracted to that person?

  3. What sort of ideas do you have about what you wouldn’t accept in your partner?

  4. What was the dating profile you had in mind? Or had created for your online dating profile for instance?

  5. What attracts you to certain men including celebrities?

The vision that you have developed overtime of your ideal partner, should be similar to developing the branding of your business. We all do things intuitively when looking for our potential partner which enable us to become more attracted overtime to that person the more we get to know like and trust them.

Access more detailed information and your own templates of what's discussed in the live sessions and podcasts weekly. By pressing on the Learn More button on the page: CLICK HERE NOW!!

To your success ladies,
Chiko💜

📍Remember to press the follow button to keep up to date with my latest podcasts. Leave feedback and comments your views do matter

EXTRA BONUS VIDEO: 

The Importance of a Good Lead Magnet

You’ve heard that you need to build your list. You need to collect people’s contact information and send them offers.

But you need to be more strategic than simply asking people whether they’d like to receive offers from you. Most people won’t get too excited about that.

This is why we use lead magnets. When you offer them something of value, people will gladly hand over their contact information.  Learn via the video below and also ACCESS FREE INFORMATION HERE!!!  - More Detailed Elite Online Business & Digital Marketing Information to help you in Starting, Scaling and Growing the Wealth of Your Business. 


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Sunday, 11 February 2018

Ladies: If You Managed Once To Escape MR CRAZY,- "Ask Yourself Deeper Questions Before You Let Him Back Into Your Life Again"


Deep Reflective Sunday Thoughts 💭 

IF YOU ONCE MANAGED TO ESCAPE "MR CRAZY," and now have a beautiful loving and caring relationship with you again. Spend a little bit more time asking your soul first what it truly wants and fight those supposed and once upon in a lifetime feelings of romance - l'amour "💔"

Just because MR CRAZY wants back in your life, it does not mean an automatic YES from you.

I would like to maintain a little bit of optimism, that possibly with some twisted fate of the universe that MR CRAZY might just be returning into your life after years of being proactive in finding ways to heal his soul. 


So maybe now he is returning into your life with some Deep Self-Awareness Qualifications & Certification from Tibet (minimal chance☺️ but I’ll would like to remain optimistic) 



Let's consider this first:

  • That once upon a time you had a Beautiful Lifestyle but sometimes Crazy Type Romance. Now that chapter in your story is over. MR CRAZY wandered into your world, your life and then stole your heart away for a reason.
  •  It is one of those chapters in your Life Story, which were meant for heart to discover some life lessons and to open your soul to another level of re-awakening.  To be FREED and healed once more from some emotional layers of your past. 
  • Now that you are fully aware of that life lesson with MR CRAZY- give you and your soul the opportunity to happily progress on with a happier and healthier lifestyle which consists of you looking after your well-being.  
  • You deserve true and utter happiness QUEEN 👑 There will be moments in your life when MR CRAZY will show up again in your life, especially when your soul starts to find happiness🤷🏽‍♀️🤦🏽‍♀️Look at this as another test to your strength of character, look beyond the emotions of your heart and what was once Love 💔 is now no more. 
  • If is okay once in while to have Self-doubt creep and to question yourself. To feel like even if you aren't fully aware, that you don't deserve happiness. When you find yourself gravitating towards MR. CRAZY again remind yourself that these are moments when your soul is purposefully dening you of the happiness you deserve. 
  • Just remember, that yes we (as women) were built to be emotionally vulnerable, but that does not mean that you cannot trust yourself to ride through those deep emotions once again. Trust me the ride does get easier and much better, emotionally the more you allow yourself and your soul to be FREED emotionally. 
  • When you have a higher level of AWARENESS remember that you are in full control- emotionally and no one else. Standstill enough and you will hear your soul speak to you and tell you what it truly wants, way beyond all the layers of yearning that once before and is no longer. 
  •  Reach out to your Non Crazy & Guru Type Friends who are a Self reflection and mirror of your soul; they will help you indirectly and guide you back to your soul. For you to feel more empowered once more to pay more close attention to your trusted guide your intuition and gut.

#Metoo been there too Ladies. Once in a while and most recently - I have had to put my soul in check and ask it what it truly wants. I ride through the waves of self-awareness and have accepted the past lessons that needed to be learnt. Now my soul yearns for greener, healthier and better type of Crazy in Beautiful Love and Happily Ever Type Lifestyle. 

What is beautiful and great in your lifestyle right now? Look within your soul and you will find the answer. - the beautiful is you and you don't have to search far for her, for she is you. 

My soul at the moment is listening and dancing to  Keen'V - Ca Va Aller (You'll Be Alrightand reminiscing on what is good and beautiful in my life right now. What was once before is a like another lifetime in history.

Note to the song: I am taking the positive meaning of this song as my soul has a different type of awareness. If you read too much into the meaning of the full song in English it might be a bit depressing (if your soul has not moved on yet). So I have opted for the more positive excerpts of the song:) 

"And they say: "you'll be alright"
I'll be alright with time, so they say.
I'll be alright, but I was not really expecting this sorrow.
And they say: "you'll be alright"
You'll be alright
And they say: "you'll be alright"
You'll be alright"
Lyrics & Song By Keen'V - Ca Va Aller

As I get ready to be  Freed By Mr 50 Shades of Grey, I feel like writing another blog this coming week, with the undertones of Valentines tide to it. As I grow older, I have developed mixed feelings of the actual Valentines Day and the whole theme surrounding it. Either way, I'll just leave it here and state that a lady is still a girl, who loves being pampered and would never say no to treats and retreats whatever day, or season of the year it might be. As she is a lady she will always treat her gent too. To be continued ....

Photo Below: Sharing with you my picture of my once upon in a Lifetime of Happier moments - a girls trip to Spain. This is a lifetime when my soul was free of any introductions to MR CRAZY in my life. I was in love with the beauty of life and soaked in its environment. I embraced my souls conviction of what and who I wanted to attract in my life. 

I attracted the beauty of life and it's beautiful souls. My soul has evolved into something that is fully aware of the previous lessons learnt in life with no regrets. The only regret would be to wonder back now in full awareness to some type of crazy by free will. Je ne regrette rien. I would not be the person, I am today had my soul not welcomed some of crazy in it. 

Here is to you setting yourself and your soul free Queen.



Wednesday, 7 February 2018

LIFESTYLE DESIGN “When Anxiety Becomes Your New Normal”


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WHAT DOES IT MEAN FOR ME


A FREER Lifestyle which fits in nicely with my nomad outlook in life. As I have always felt that am not bound to one place or country.

WHAT DOES IT MEAN?

This is when you have discovered there is more to life than just the daily 9-5 pm grind (that you feel imprisoned or tramped in). You feel empowered to manifest your own lifestyle whether it be in the chosen career (that you love), or in a as a Self-Employed, Entrepreneur Person

You have strong conviction of self-belief, that you can achieve what you set your mind to – and set out the intention to the universe (if you religious then through other means)
You realize that there is more to life than just working hard to pay off the bills and then to just die.

Your mind becomes more solution focused and outward looking with a sense of where there is a will there is a way to overcome the life challenge you might be experiencing. You also see solutions in helping others


You no longer FEAR certain things like before
  • Fear of what will happen if you don’t have something to lean on such as a job and the not a guaranteed security pension fund (not guaranteed because by the time you reach pension age, you realize the funds are not sufficient to sustain your lifestyle)You don’t fear certain things like bills and not being able to pay them on time and the what if
  • You are no longer bound in chains by what others say about you, or what you are doing – because you understand you have a purpose in this life and you will attract the right people and right opportunities.
  • You no longer come from a mindset of lack or fear failure because you understand that in life there are only lessons and the only way you can grow through learning
  •  You don’t FEAR investing in yourself, especially when it pertains to furthering your Life Purpose and Vision 
  • You no longer live in this heightened state of you NEED MONEY and need to see RESULTS NOW, because you understand a bigger picture of what it takes to obtain long term success

Instead you become a life strategist:
  • You learn methods of how to plan effectively and how to WORK SMARTER – NOT HARDER. 
  • If you don’t have something, you plan strategically and communicate it clearly verbally, or in writing for yourself and with the people who need to know; how and when you will get there rather than sitting and waiting for life to happen, or opportunity to coming at your down, or luck to happen
  • You allow yourself the opportunity to become more of a RISK TAKER.
  • You no longer feed of energy of whether you are the most popular in high school – for you understand there is more to life than just getting attention. You understand that unlike being in your former schooling life that you do not need to be perfect (pass with all A’s) as life is more real than that- that showing up as yourself is what attracts others to you
  • You have a Life Vision, A Life Purpose, A Life Passion, which is linked to helping others beyond you and your family. Which is beyond money 
  • You understand that money is only a vehicle and a tool to get you to fulfill your life vision before you die. As you understand you will not take money to the grave with you, nor will others remember you for eternity for $1 million plus you had in your bank account. Some will want it for the wrong reason to serve themselves, but not to recognize how hard you worked for it.
  • You welcome each moment you feel this gut tension and level of anxiety as your new normal; you live life to push yourself further and further out of your comfort box, because you know that each time you will meet a newer and more refined version of you – that is the person that holds the keys you truly living your life as intended
  • You understand that life comes with its on challenges and its not about being happy all the time its more about developing a positive mindset; which allows you to pick yourself up again – after you have learnt and gone through the challenge. You use that challenge to rise up again with a much more strength of character
  • You understand that my embracing this type of Lifestyle its not going to be a picnic walk in the park, where you sip endless flowing champagne whilst you are working on your laptop at some exotic island or stately castle.
  • You understand there is still work to be done – you have more creating to do and you enjoy it now because your mind is FREE off any obstacles you as you find solutions. If you don’t see solutions, you welcome the new challenge 
To end is this type of lifestyle for everyone? It does not have to keeping in mind that any path you choose in life – you have a choice within it to be life a fulfilled life just as long as you allow yourself to plan – how and when you will get there if you are not already there.

Now if you want to learn how to live in this type of FREER Lifestyle and where you feel much FREER inside. Let’s connect today, by you TAKING ACTION and reaching out to me. After all this is about your life journey and not mine REACH OUT TO ME HERE!!!


Thursday, 18 January 2018

LONELINESS COSTS BILLIONS TO SOCIETY - HOW CAN WE AS A COLLECTIVE CONTRIBUTE TO MINIMIZING THE RISKS ASSOCIATED WITH LONELINESS?

#DeepReflectiveThoughts

#Loneliness costs billions in society. What is the real cost to our Inner being, Life, Relationships and Businesses?
Are you aware of how loneliness impacts your well-being: Mentally, Physically (Even when we are surrounded by people including loved ones we can still be lonely)
What could we do collectively together to use the cost (billions) to better our world; minimise health and well-being risks associated with loneliness?
Could the goal start off with Globally Awakening People to that Goal? #Loneliness 🤷🏽‍♀️
Could we use our source of light 💡 for others to find themselves in and out of their darkness
▪️If you started in a new company you are lonely
▪️If you moved to a new country you are lonely
▪️If you started a new friendship you are lonely
▪️If you spend most of your time looking down you are lonely
▪️If you spend your time in a cafe not speaking to anyone and looking at your gadgets you are lonely

In the Real World: What can you do about it each day, small steps to get closer to another soul? To recognise another being, who may need just a little bit of your light or vise versa you might need theirs?

▪️What are the things that stop you from shining and from tapping into your own infinite source of power/light from within?
▪️Are you able to connect with your soul and to ask it what it truly wants? So that each pain, joy or tear is known and enables you to step into your own greatness? Ultimately you will find love from within that does not judge you💕
Referenced from Tony Jeton Selimi 🧚🏽‍♀️
Chiko💜
#LightWorkers: I see you, keep doing yourthing. Remember to reserve your energy source too
☺️ 🙌🏽💡 🌞☀️

Orthotics for Hard and Soft Tissue Injuries. Ossur.

Wednesday, 3 January 2018

Cardiomyopathy- What Can I Tell You About My Story? -The Pain, The Experience of Loss, Its Deadly Affliction?



"We can never experience life unless we have gone through pain"


It has taken a long while to get to this stage and to be able to share a story so close and personal. I am guided by the belief, strength and courage that Lo, loved helping people and giving back to good causes. Also guided by the believe that she would have been at the forefront had she been in the position to share her own personal experience in the hopes of helping other people become aware of Cardiomyopathy. 

"Dialated Cardiomyopathy"- What can I tell you about this heart condition and the impact it has had on me and my family? This is my personal journey of how I experienced the affliction of Cardiomyopathy. 

I share with you this story of my own personal story, so that you know. So that you, or somebody else who might not be aware of this condition are now aware. So that you might be in the position at earlier stages of this condition to do something about it. 

I have been lost for words since the day, our beautiful angel left this world in her entity, but not with her spirit. 

December and January each year is especially one filled with deeply heart felt re-awakening moments and realization of how precious life is. It usually feels like an automatic countdown where my body and soul does not need to be reminded of the significant loss we experienced around this period.  

I am reminded physically and emotional to the very last day,  she finally decided to leave her entity and not in spirit; in order to be with her father up in heaven, who she truly loved. She decided to depart whilst we were fast asleep and only a few minutes and miles walk away from her. 
Sometimes, I feel as though she knew when was the right time she could easily sneak away without causing us any further concern or worry. 

Each day when I left her Intensive Care Unit (ICU) hospital bed, it felt like another painful reminder that I had to walk away, whilst still hanging onto the belief that all would be well in the end. 

Each day until the final week and last day, it was like living a true definition of "Ground Hog Day." The very last week, last day, last hour, last few minutes still play on my mind like a movie. We would be awoken from sleep (not that we slept much) during early dark morning hours with the same familiar cell phone ring tone. 

Each morning that last week, we would be awoken mid sleep by one of the Nurses and before the hospital visiting hours to come to the hospital (we couldn't stay even if we tried at the hospital). Each visit would still be filled with some moments of hope that she would awaken yet again. 

Each day got closer to us saying the final goodbye. We would be reminded on numerous occasions by Dr's to make peace and to say our final goodbye. This was a repetitive reminder and primer to awaken us yet to another surreal reality. 

My days, weeks and months were filled with many surreal moments. It felt like I was living in a surreal world locked away from the reality of the daily norms that other people around us were still continuing to live. I felt like an outsider looking in, into a world which I once belonged to. It seemed like a familiar distance memory, which I had been unplugged from and placed into another realm which become my reality. 

Hospital food when I could eat became my new normal and the equivalent of home cooked meals. The hospital cafe became a new retreat to stop-by once in a while for a Coffee. 

The hospital pharmacy and shop became a place to refill and refuel our little angel's care needs and our needs as well for the day, or for the week. I was happy to in the position to know that she was being well taken care of. 

The hospital waiting rooms and spaces (not many) became a refuge away from home; a living rooms away from home. Only difference being was that our living space, would at times become occupied either by the same familiar faces, or new faces consisting of other family members. Some of these family members were in a similar situation as ours.  

You didn't need to ask their reason for being at ICU unit after the first hello. I could see through their eyes and soul, their daily lived experience for it mirrored mine. In them I saw a mirror image of me. 

Other times our living spaces were filled with sheer and complete quietness on hot summers day. I would pick the usual spot and chair if possible that I claimed as mine. Sat starring out of the large hospital windows into complete nothingness even though there was life in view. I would gaze past all the life below and beyond the trees into the Skye. 

These were moments of solitude and opportunities to digest my new normal. Moments to catch up on a bit of mental rest in between waiting for visiting hours to re-start again. Also family moments to go over what our agenda for the day would be.

Our daily norm of the equivalent of 9-5 pm working day, consisted of waking up early to go to the hospital until the last visiting hours which meant coming back around 7-8pm to our temporary home. 

The hospital prayer room became a place for me to escape.  Who knew I would want to seek refuge in a prayer room, but it made sense as the only place where time could possibly stand still and I could be surrounded by complete quietness. It made sense to be connected with any spiritual.  

It was a tiny space, suitable just for its function. A place to just seat still and shutout the whole world. Although I had already mentally disconnected from the "real world."

The normal world became a place that was like a far away like Alice in Wonderland World that seemed surreal and distant. As the world I now lived in was completely different.  Smiles and laughter from other people were at times a painful reminder of existence of life, as my soul had become somehow numb and dead to the feeling of what laughter meant and was only filled with deep pain. 

Shops, leisurely things, the sun and the heat did not awaken anything within me. 

I walked and existed in a world as an entity, but not in mind and not fully engaged aside from learning and becoming familiar with what this deadly disease was.  I (we) became involuntary medical experts at knowing Card-o-my-opathy inside out. 

Christmas came and passed just like any other day with no special meaning tied to it. Aside from truly appreciating with great sadness the value of life.  

New Years came with fireworks and parties being held by people in our cul-de-sac complex and home away from home; self-contained hotel apartments with security (to make us feel secure, well as most places in SA security is a requirement).

Fireworks and happy sounds pierced through our living room walls and yet it felt like living a dream. As though I was watching in a movie and soon enough the movie would be over and we would wake up and get out of this foreign city, which had become our temporally home by default.


You would think passing through Nelson Mandela's childhood village and seeing it from afar that would awake something in me. You would think that seeing his statues would awaken something in me. I felt numb 

South Africa (SA) would only remind me that we were in this place at the right, yet at the wrong time and under the most unimaginable life challenging circumstances. 

I was not there as a tourist to take in the sights, or culture, especially as my everyday normal meant visiting the ICU unit to sit with our angel to chat with her, as she slept for months. To playing her favorite music, or to reading her favorite quotes from the bible - the faith that she strongly believed in and held close to her heart.  

To imagining days that she could potentially grow up into a young beautiful woman, to seeing her in her wedding dress and imagining her with her family. 

To reading her machines for I knew exactly what each machine's function was including each intravenous tube and prescribed medication.  I become familiar with each and every medical description and intended usage. So much so, I felt empowered to question if something was a bit off or didn't appear quiet right. 

The same days would consist of walking around the hospital completing our delegated tasks for the day. Whether it consisted of paying off bills for each department or unit, visiting the pharmacy. Followed to being in the waiting room, to much needed coffee breaks in the hospital restaurant. 

Or moments walking outside the hospital, so I could catch some of the summer heat just to feel some form of life within me. Only the touch of the sun to the skin or face, was just another re-awakening of deep intense sadness. 

To days when it felt okay to leave the hospital to go out and have a meal nearby. Especially, when the hospital food had become all too familiar. The food became a function for sustainability.

Days filled with researching online, talking and negotiating with some Health Professionals, Management and Administrative Staff and being stuck with some souls whose sole purpose felt like it was to test your strength of character.

These are moments that you awaken to the reality that there are some aspect of the hospital world which are still very clinical and too administrative. Never mind that you are in the most vulnerable and challenging situation you will ever be in; it was business as usual in the hospital. 

Days when you are stuck with the a Health Professional you wished you had never crossed paths with and only know you are stuck with them, as you have no choice, or immediate alternatives (due to other Health Specialist deciding to take Christmas and New Years holiday break). 

To the most surreal moments of being surrounded by beautiful souls, such as some of the Hospital Nurses, other Doctors and family members going through similar experience us ours. 


To other beautiful souls who came from miles away just to be with our angel and to keep us company, just because they had either heard our story, or were familiar with us and felt compelled enough to visit. 

To then being surprised by "some religious folk" we will call them of the extreme kind. Who believed our angel was possessed by some evil spirit that needed to be exorcised out of her.
 Who felt entitled (yes entitled) to take up space and pray out-loud. Never mind us, patients and the hospital rules.  Let's stop right there and yes this became my new and surreal normal. 

Some days, I felt like screaming out bloody murder. To willing myself to find a place within my soul and center of inner calm to remain at ease; through meditation and connecting back to my existential spiritual being, I found my center of calmness. 


To days when, I wore my warrior shield and advocated on behalf of our angel. To moments, I felt compelled to advocate on behalf all of us. 

To days I wished for utter complete silence - so silent you could hear a pin drop. So I escaped into the world of daily meditation and yoga; and for that 1 hour the world stood still and nothing else existed just nothingness. Followed by sitting outside our hotel apartment balcony overlooking tall green trees and beautiful endless green land beyond some of the buildings. 

There is something peaceful and tangible when it comes to truly becoming connected to nature and the universe. These are some of the moments, I am most thankful for as they maintained my level of sanity. Including being surround my loving family members. 

The third wake up call came yet again from the hospital nurses. Another gut wrenching reminder that time with our angel was only limited and not on our side 

Many a times I have thought about doing a video to share my story, but I still get tongue tied. I feel like my voice froze in time and all I am left with are film like imagines as a memory. I am frozen perhaps due to still being tied to a deep spiritual connection 💔  and usually don’t know where to start with the exception of finding the space like today to write. 
  • How do you start to tell a story of a beautiful angel that came into your life only to be taken away, so quickly, so young and so suddenly. From the time of becoming sick to only two months of her sudden illness to then passing away; before we had come to grips with it all and without any control of the outcome. 
  • How do you begin to speak out-loud a story of heartbreak and one filled with deep and intense surreal moments?
  • How do you begin? How would you begin? 
I share with you this story of my own personal story, so that you know. So that you, or somebody else who might not be aware of this condition are now aware. So that you might be in the position at earlier stages of this condition to do something about it. 

"We can only raise further awareness through sharing our own personal experiences in the best format we know how, in hopes that another person's life may be saved." 
  • So that in one way or another if not through spoken word, so at least you know. And possibly you may be able to relate to my personal journey as well and find a bit of comfort in knowing that you are not alone. 
  • So at least someone else, another young beautiful soul, or any souls who don't know about this dreadful condition know and may never have to go through this experience. 
  • So that you know and aware of the steps to take, with the hopes that someone else will be treated in a timely manner and provided with the medical care that they need most. 
  • I share with you this story, my own personal story for you to see it does not matter how much money you have in the world with this ailment once you are afflicted by it especially if you are not well informed in the beginning to do something to minimize it from escalating.  
  • I share my story as well, for I believe it was intended for me to share. As I type there are many numerous people, similar to us in a Malawi, other countries who may not be aware of what they have. Who may not be have the means or access to adequate health care and equipment not due to the fault of their own. 
How did we get here? Lessons learnt: 

Flashback forward to a time before I decided to jump on the plane from the UK through my intensive gut intuition to fly immediately to SA. I can remember when I would speak with her everyday on my way to work and started to know all was not well. 


Earlier signs and symptoms to look out for: 
  • No it was not Malaria, or some form  of bug that would eventually go away with a bit of rest, as some medical professionals thought initially. This condition may disguise itself as that at times. Helpful to know your family health history as well. It can show up suddenly and cause sudden death for people. 
  • The times she could barely speak because she was struggling to breath and her charmful laughter would fade away with silence. At time's medical professional speculated it might be Asthmatic symptoms and at first the condition may present itself as such.   
  • The first site of seeing a picture she sent me to me. I knew intuitively this was not some for flu or malaria; well maybe a viral infection/bug could have been a potential trigger that escalated and impacted her heart. This is can happen too 
  • To first sight of seeing her, legs swollen and body as well upon my arrival in SA. These are some of the signs as well, including restlessness that you may notice
  • You may find yourself going from one hospital to another especially if specialisms are limited, keep persevering through and follow your intuition until you find the right specialist medical professional such as a Cardiologist. 
Cardio-my-opathy is what the first medical professional called it- this word didn’t even exist in my vocabulary prior to this. This word would become imprinted and arched into my heart. Little did we know how deadly this condition could be. 

My gut ached in severe pain and urged me to fly right away from the UK to be with Mon Petit Ange, as she was flown to South Africa from Malawi; unlike some people in Malawi, we were in a fortunate position to be able to seek alternative medical option. For that opportunity I will be ever grafetul. 

Initially, her journey would start off with multiple misdiagnoses and too many delays in between due to lack of knowledge, limited medical equipment and facilities when they were needed most. These are the challenges some people face in Malawi and other countries with limited medical resources 

Like a nightmare these would not be the only challenges and obstacles she or we faced. One in the form of the very same SA Health Professional who could have afforded her and us  better care and medical experience (we shall leave it there for now, still working on Ho'oponopono on this one). 

Our little angel being the person she was would utter the words of forgiveness for those who are unkind (her exact words will forever remain with me). 

I call her an angel (Mon Petit Ange) for this is what she represented in her living form. She was giving, loving, calm, forgiving and religiously connected to her faith. This is what I truly believe caused, so many people to connect with her, even if those who had not met her before.

Never in my life did I think, nor her think, we would find ourselves in a foreign country for two months. That our lives would be flipped upside down from the moment we arrived.  Until the day she finally said her final goodbye in entity. 

You see I only had a couple of day with her before she collapsed to her only awakening for one day only before she wold remain in a coma. Like a movie, I was there for every scene that took place from the moment she collapsed, to the moment the doctor rushed into their office room to deliver the news and then to the moment the medics arrived.  

To a nurse rushing into the room, with sweetened water prompting me and my aunt who I had been with this whole time and in the beginning to drink the water. To me wondering why she would want to offer us water at this precise time and why sweetened water (these were thoughts in my mind). 

To flashing moments of feeling present and not present at, a feeling of outer body experience. 


To forcing myself to find the strength to find my legs to walk down the corridor and then around the corner, even though the nurse tried to stop me along then way.
 

To seeing all these medics one on my left on the phone (looking back possibly talking to the ICU department and describing who they were bringing in and what had happened). 
To seeing some medic professionals dressed in green, some in the examination room, we had just left a few minutes ago.

To seeing the stretcher on the floor with someone on top of it. Again me totally disconnected from reality.  


To feeling like the ground had swallowed me whole, to the point that I could not breath and take it all in, to bringing  myself to awaken to the reality that it was my Mon Petit Ange lying there on that stretcher.  


To the point time stood still, that any form of noise, voices, sounds just become echoes in the background and belonged to a place far, far away from me. 


To the point that my my vision became blurred, as it became  flooded by streams of tears, which I didn't feel, or connect to immediately at the time. It felt like being in a dream, where you are seeing things, but are unable to move your body and to utter any words.

To the moment of finally being able to find my feet. After I had been supported back to the office by the same Nurse who attempted to offer us sweetened water earlier. 

To sitting there waiting and trying to decide what seemed like hours, but was possibly few minutes; to pick up the phone and decide who I was going to call first in my immediate family and what the first words, I could utter or articulate out-loud.  My fingers had lost their sensation and frozen in time. 

To the point of calming myself down, back to self awareness of my body. To finally seeing and hearing my aunt near me, who had also been there with me crying, praying, calling one person after another - only I could not move. I could not utter a word. I sat still. I felt paralyzed as though as someone had glue me to the seat. 

Then I remembered why the nurse had rushed in the beginning to ask us to drink the sweetened water, it all made sense now. She had been there before possibly in emergency situations like ours trying to help other distressed family members and trying to maintain their well-being and to minimizing the risk of us fainting.

Off to the ICU Unit, we went for what seemed like hours had passed by in between calls and completing hospital forms and trying to articulating why we were there. All focus was lost and any sense of being. 


The walk to the ICU took what seemed forever and to waking up to the another reality of how serious the medical condition was. 


Days would go back during the holidays of understanding the condition further, learning more from nurses, health professionals.

To trying to find alternative medical health professionals for second, or third opinion. Like a movie there would be barriers or obstacles we would face, as the specialist we required were off during the same period. 

When we found empathetic and caring medical professionals following the holiday break, we would be sat down for family briefings.  Their narrative would consist of the similar tone. To find ways to make peace and decide ultimately what we wanted to do. To the narrative that our angel would know when it was her time to leave this world. 

So I decided ultimately to make my own spiritual connection with my Mon Petit Ange just the two of us, as I stirred at outside the window far and beyond the trees into the Skye.  
We spoke silent words which brought me internal peace and hopefully peace for her as well (these words shall forever remain with me). The deeply rooted pain in my heart, felt as though it had been lifted slightly as I felt it floating away beyond the hospital window, beyond the tall trees into the Skype. 

You see I would like to believe we both made peace with what we both knew and could control; that was our love for each other. 


In the end, just like the health professional mentioned our angel decided to leave and to join her father in heaven (you see she was a believer in something greater and beyond her). So she decide it was time.

There she lay as herself with no intravenous tubes, or machines and looked very peaceful. It was this precise moment that I knew that her entity had finally departed. 


Then came the time we had to leave and say goodbye and it felt again like the ground had swallowed me whole again. As we walked away from the ICU unit, my feet became heavier and heavier. How could I leave her behind, thoughts run through my mind. For we came together how could we leave her behind? 


How could I leave you behind? 

I recall a nurse in tears running around the corner and calling my name. I knew which Nurse it was  ( a beautiful soul). Her hug, her empathy, her words will forever be with me. For it downed on me yet again that our angel was gone and we were not leaving the hospital as we usually did after hospital visiting hours to come back again.

My legs froze in time and I cried out-load for the very first time to this cruel and heart arching awakening; as I was helped outside of the hospital into the car. 

Thereafter, I continued to exist in entity, but not in full being and existence. Moments would flash by and words would be spoken which I could hear in the background. I would function because there is a level of function that creeps in when you are in an emergency, or flight situation most of the time. 

I will not be able to articulate what it felt like to walk into shops to select a white dress for her to wear.
To walking into a mortuary to seeing her laying there, but not seeing her as I had see her before. To feeling like someone had kicked me in the gut several times over. Especially seeing how clinical, cold and how isolating the place was. To wanting her hair to be tied up in a ponytail just like she like it to be; as I described to the lady who would ensure our wishes were met. To choosing her coffin; all within a short and limited space of time.

So how do I tell you my story and vocalize it out-loud? 

I will skip over the days of planning the funeral to the burial to the final goodbye

Why do I share my story, because now feels like the right time.
  • There are many people suffering with the heart condition known as Cardiomyopathy and die from it without ever knowing that their families had been afflicted by this disease to only be afflicted by it themselves.  There are many generations of families who go without knowing and die from it without ever being properly diagnosed. 
  • They are many people from developing countries who do not have the right medical facilities, equipment and specialist support in their countries to help with their condition. 
  • There are many of us even when we find the right help and hospital in the end that it may not also be good, due to inadequate and poor quality care by “some” not all medical professionals. Fortunately, in our case the good health professional outweighed one bad seed. 
  • There are some people like us who may find themselves in foreign countries - vulnerable and in an unfamiliar medical system that they have to navigate through whilst seeking the best care of their loved ones, but not have an external outlet to help them within the country they are in. 
  • There are many people who experience loss through this condition and feel like they do not have voice, or space to be able to speak about their pain. There are some people who believe they need to seek permission before they can share their painful experience.
"It only through sharing our lived experience that we can help many other living soul's become well informed" 
Advise and recommendations I can impart on you: 
  • Educate yourself as much as you can about this condition. As you never know who you might be able to help steer in the right direct to go for specialist medical check up as soon as possible. 
  • Get yourself tested if in doubt, or believe there might be a family history (even if not known, you will know by the sign and symptoms family members may have experienced in the past).
  •  This is not one of those conditions one can shut the door to and hope it will go away. Unfortunately it can escalate very quickly and cause sudden death if the right treatment is not found for the heart. 
  • Always identify your Embassy location before you travel. Including medical facilities requirements and insurance cover, should you need them when you are in a foreign country. Although I attempted to contact the British Embassy, as I was not the one who was impacted they were not in the position to help. So this is something to be aware of as well, if travelling with family members, or individuals with different nationalities. 
  • When you find the right medical support, do take it seriously and continue to follow the specialist advise. 
  • It might be helpful to become aware of your legal entitlements in a foreign current when it comes to raising concerns. Keeping in mind that some services may not be as responsive as you are used in your own country and may take longer to resolve by health governing bodies.
Sudden loss and grief is the hardest process ever to go through especially when you lose a soul only so young and in earlier stages of their adult life. Any form of loss is heartbreaking.

📝 Note: This is only my personal story and a reflection of my own experience in the best way I could articulate it. 



May you continue resting in eternal peace my beautiful Mon Petit Ange Lo,  I shall love you forever more plus eternity, plus infinity - your 
much older and wiser sister 😉💜💜💜
A Millions Tons of Gratitude goes out to beautiful souls in this lifetime who connected with us, in the name of Lo. Thank you being supportive, caring and very loving during our most difficult family experience with Cardiomyopathy: 


Thank you to the nurses/medical professionals from
 Cardiomyopathy UK  for all the online support you provided. I shall forever be grateful for your support and the response provided in our time of need

Sincere deep gratitude goes out: 
The Malawian Consulate Staff in Johannesburg for being responsive and proactive as soon as you discovered our situation. In providing us the support, facilities and resources we needed when it most mattered.  

Medical Professionals and Nurses at the Netcare Sunninghill Hospital especially for your daily encouragement and for bringing in some level of sanity in our lives. 


To loved ones and family friends,who did most of the ground work for us in Malawi with no questions asked you are such treasures and diamonds to keep forever in our hearts. For friends and everyone else far and wide, you are precious and beautiful souls for being there in the name of Lo. 


To Arts Connect International -To Marian Taylor Brown (Founder) & Isable Kumwembe for stirring a great cause "7 Dresses for Health," in raising further awareness about Cardiomyopathy and in helping to raise medical funds.


                                                                 


To Lo's friends you know who you are, I love each and everyone of you for loving her as much as you did and continue to do.  Love you all. 





Learn more about Cardiomyopathy here 

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